Family Support Educator - FSE, Bilingual

Role overview Provide bilingual, field-based education and ongoing support to people with Rett syndrome, their caregivers, and, where appropriate, other members of the care team. You’ll help families understand the condition, product information, and therapy management across the treatment journey, while coordinating with internal partners and community organizations. The role is national in scope and may cover multiple states.

Responsibilities - Explain disease, product, and therapy information in accessible language before, during, and after treatment begins. - Assess individual family and caregiver needs and provide relevant education and resources over time. - Engage through in-person, phone, and virtual conversations, and participate in community events or caregiver programs. - Coordinate with teams across patient access, medical affairs, advocacy, sales, and marketing to support educational opportunities. - Share field insights that can help improve educational materials, resources, and therapy management support. - Provide information sessions to physician offices about the educator role and available patient support resources.

Requirements - Professional fluency in spoken and written Spanish. - For the Family Support Educator level, at least five years of relevant healthcare or pharmaceutical experience, including two years in patient support or education. - For the Senior level, at least eight years of relevant experience, including five years in patient support or education. - A bachelor’s degree is preferred, particularly in life sciences; relevant clinical, social work, or patient advocacy experience may be considered in place of conventional experience requirements. - Ability to travel up to 70%, depending on the assigned coverage area, and work independently across a broad territory. - Strong communication and relationship-building skills for working with families, healthcare professionals, and cross-functional colleagues.

Nice to have Experience with rare disease, patient and caregiver education, product launches, advocacy, or public insurance programs is preferred. Nursing, social work, or patient advocacy experience in neurological or rare disease settings may be relevant. An RN, MSN, or MBA is an additional asset.

Benefits and work setup This is a remote, field-based U.S. role requiring access to a major airport. Compensation includes a base salary range of $124,000–$155,000, with potential bonus and equity awards. Benefits include medical, dental, and vision coverage, retirement plan matching, paid vacation and sick time, holidays, parental leave, tuition assistance, and other coverage.